Health & Science

‘A burden to families': ADHD medication shortage impacts patients

With a nationwide shortage limiting availability of ADHD medications, patients and their families are scrambling for solutions

NBC Universal, Inc.

A nationwide shortage of medications for ADHD has patients scrambling to fill their prescriptions.

The FDA and DEA are now calling on drugmakers to boost manufacturing to help with the issue, but some patients are turning to alternative medications, or lowering doses, to avoid going without.

STAY IN THE KNOW

icon

Watch NBC10 Boston news for free, 24/7, wherever you are.

icon

Get Boston local news, weather forecasts, lifestyle and entertainment stories to your inbox. Sign up for NBC Boston’s newsletters.

Christy Moran was diagnosed with ADHD about a year and a half ago, and in recent months, she has had trouble refilling her prescriptions at pharmacies near her home in Hudson, Massachusetts.

"A lot of the times, they've told me that it's either out of stock, they don't know when they're going to be getting it back in, or that they only have a certain amount available, and if they've only had a certain amount of available, they've told me they can fill that, but then I can't get a refill for the rest of the month," said Moran. "So there's been many days when I haven't had my medication."

Once, she was able to find her medication from a Facebook page where people crowdsource tips on supply.

"The biggest thing that I see are posts from parents saying, 'Hey, can someone let me know where they've been able to get a prescription?' Very often, it's like day by day, a pharmacy might have availability," Moran said.

Since the start of the pandemic, more adults are being diagnosed with ADHD. Most of them, didn't even know they were living with the disorder, so how do you know if you have it? Dr. Thor Bergersen, the founder of ADHD Boston, says it's a big challenge and that it also looks different in adults than it does in children. He adds that the signs and symptoms can be hidden by things like depression and anxiety.

Her daughter has also been diagnosed with ADHD, but she takes a different medication that has not been as hard to find.

"She has a lot of challenges, just functionally getting through the day. So I can't even imagine not having that medication for more than a day or for weeks, especially with school starting up," Moran said.

Jessica Marotta of Melrose says she has been struggling to refill prescriptions for her 11-year-old son who has ADHD.

"It's so difficult, because these are medications that he takes every day. And so, when they're out of stock, it just throws his whole routine off," said Marotta. "It's just not fair to him."

She said his developmental pediatrician had upped his dosage, but it was so difficult for them to get that amount that they reduced it.

"I'm concerned, because the dosage is aligned to their weight, and so, you know, I worry about as he gets bigger, is the larger dosage going to be available? Because right now, the dosage we need isn't," said Marotta. "There are more impulse control challenges, and just controlling his behavior and his body. He cannot get through a school day without it."

"I just hope that they the drug companies get their stuff together," Marotta continued. "I mean, this is something this is happening all over, and a lot of -- so many parents are in the same shoes that we are in."

The medication shortage started almost a year ago, due in part to manufacturing delays with a major drugmaker.

"It seems that the shortages are becoming wider, deeper and now affecting pretty much all stimulant classes and medicines that are used for ADHD," said Dr. Timothy Wilens, chief of the Division of Child and Adolescent Psychiatry at Massachusetts General Hospital in Boston.

He said some patients have had to change medications as a result of the shortage.

"It's a burden to families, because sometimes we've had to use smaller amounts of the medication, but at an increased frequency that may cost more than a copay, or we've had to go from a generic, less expensive one to a branded medication that may have a higher copay," Wilens said.

In addition to manufacturing and supply chain issues, he said other companies weren't able to increase supply because there are quotas for controlled substances.

"Remember, there were a number of issues with overprescribing and overuse of opioids, and new legislation and litigation that followed that, that now we're seeing unintended consequences on stimulants," said Wilens. "At the pharmacy level, the amount of stimulants that they get are often predetermined two to three months in advance with ordering. And if all you need is a few families to go from one pharmacy to another, and it uses that supply the pharmacy may have, that then wouldn't be available to the regular families that go to this pharmacy."

He shared some recommendations for patients impacted by these shortages:

  • Renew prescriptions early
  • Contact pharmacies to see if they have the medication in stock and let prescribers know to send it to that pharmacy
  • Talk with your provider about exploring options for other substitute medications
  • Have patience

"Try to have some patience with the pharmacy. They're doing the best job they can. They're caught in the middle of this. Practices like myself are up 50%, or half of our requests for stimulant prescriptions are actually resending stimulant prescriptions to different pharmacies because of shortages," said Wilens. "And then finally for your child, or yourself, if you're missing doses, etc. You know, it's going to be hard. It's going to be tough because you're off your medicines for ADHD. But cut your child or yourself some slack, knowing that it's not your fault. It's an issue with the availability of these medicines."

Contact Us