ALS

Pat Quinn, who co-founded the ALS ice bucket challenge with the late Pete Frates, died Sunday at the age of 37, the ALS Association said. Quinn, who was diagnosed with Lou Gehrig’s disease in 2013, a month after his 30th birthday, and Frates helped popularize the social media challenge, which has raised more than $200 million worldwide for ALS research.

The legacy of Pete Frates is living on, with the Ice Bucket Challenge being credited with supporting a new potential breakthrough in the quest for a cure for ALS.

An experimental medication may slow the progression of amyotrophic lateral sclerosis, or ALS, researchers reported Wednesday.

An activist who is unable to speak because of amyotrophic lateral sclerosis made his voice heard with a powerful speech about America’s “fundamentally broken” health care system at Tuesday night’s Democratic National Convention. Ady Barkan, 36, used a computerized voice to advocate for universal health care to fix a current system he called “dehumanizing.” “We live in the richest country in...

Researchers at UMass Medical School and Mass General Hospital on Wednesday announced potentially groundbreaking new gene therapy to treat the neurodegenerative disease ALS. The research received funding from the Ice Bucket Challenge, the viral fundraising effort that’s raised more than $100 million in under six years for the fight against ALS, also known as Lou Gherig’s disease. The UMass...

UMass Medical School and Massachusetts General Hospital are the first to safely use gene therapy to treat two research patients with ALS.

Sean Healey, the longtime chief executive of Affiliated Managers Group Inc. and a local business and philanthropy leader, died Tuesday at the age of 59 after living for more than two years with amyotrophic lateral sclerosis, according to the firm. Healey, the husband of former Mass. Lt. Gov. Kerry Healey, joined AMG (NYSE: AMG) as an executive vice president in…

Hundreds of people plunged into the chilly ocean at a Massachusetts beach on Saturday to honor Peter Frates, the former college baseball player whose battle with Lou Gehrig’s disease helped spread the ALS ice bucket challenge. About 1,000 people showed up for the final “Plunge for Pete” at Good Harbor Beach in Gloucester, and more than half of those braved the...

Every year, Jake Kennedy and his wife help thousands of families in need celebrate the holidays. But this year, the family behind Christmas in the City has a wish of their own — to cure ALS.

Jake Kennedy has organized Christmas in the City for the past 30 years. But this year, there’s another wish on the list: to find a cure for ALS.

Loved ones and community members gathered Monday to celebrate the life of Pete Frates, the Boston College baseball star whose efforts to raise awareness for ALS inspired many across the nation. Those close to Frates were sharing stories at the “Celebration of Life” event at Frates’ alma mater, St. John’s Preparatory School in Danvers, Massachusetts, near his home town...

Well-wishers came together Monday to celebrate the life of Pete Frates, the inspiration behind the ALS Ice Bucket Challenge who died this month at 34.

From the North Shore of Massachusetts to the Boston area, mourners on Friday paid their final respects to Pete Frates, the former Boston College baseball standout captain who dedicated his last several years to raising awareness about ALS. At St. John’s Prep in Danvers, where Frates attended school, hundreds of current students at the all-boys Catholic school linked hands...

Family, friends and elected officials laid to rest Pete Frates, a man that his former teammates call a hero.

John Frates said they are celebrating Pete Frates for the magnificent human he was.

The former Boston College baseball player whose public battle with ALS inspired the popularity of the ice bucket challenge was laid to rest on Friday.

Family and friends of Pete Frates will hold funeral services for the Boston hero, who died after a 7-year battle with ALS.

Pete Frates, the inspiration for the Ice Bucket Challenge to benefit ALS, has died, according to his family. The Beverly native and former Boston College baseball star was diagnosed with the progressive disease, known both as amyotrophic lateral sclerosis and Lou Gherig’s disease, in 2012, when he was 27. He helped start the Ice Bucket Challenge two years later, and...

Dozens turned out at Pete Frates Park in Beverly to remember the 34-year-old, a day after Frates died following a long battle with ALS.