ALS

A Cambridge company has won approval for a new drug to treat ALS. For many families, it brings a new sense of hope. The new drug from Cambridge-based Amylyx Pharmaceuticals Inc. is called Relyvrio.  “People with ALS are some of the most strong and incredible people,” said Joshua Cohen, co-CEO and cofounder of Amylyx pharmaceuticals. Cohen and Justin Klee...

The FDA approved the drug based on results from a small, mid-stage study where ALS patients appeared to progress more slowly and survive several months longer.

The drug could potentially be a gamechanger in the battle against ALS by extending the lives of people with the condition.

The bassist for the Zac Brown Band announced he has been diagnosed with ALS.

U.S. health advisers have narrowly ruled against an experimental drug for the debilitating illness known as Lou Gehrig’s disease

The Food and Drug Administration has issued a negative review of a closely watched experimental drug for the debilitating illness known as Lou Gehrig’s disease

President Joe Biden has signed a bill into law to block imports from China’s Xinjiang region unless businesses can prove the items were made without using forced labor

Jerseys, baseball bats and other items that belonged to Pete Frates, the former college baseball player whose inspiring fight with Lou Gehrig’s disease helped popularize the ALS ice bucket challenge, are being auctioned. Proceeds from the online auction that runs through Tuesday will benefit the Peter Frates Family Foundation, which assists ALS patients and their families with the cost...

Legendary Bears defensive tackle Steve Mongo McMichael has been diagnosed with 36-month onset ALS.

Major League Baseball will hold its first Lou Gehrig Day on June 2, adding Gehrig to Jackie Robinson and Roberto Clemente on the short list of players honored throughout the big leagues.

Pat Quinn, who co-founded the ALS ice bucket challenge with the late Pete Frates, died Sunday at the age of 37, the ALS Association said. Quinn, who was diagnosed with Lou Gehrig’s disease in 2013, a month after his 30th birthday, and Frates helped popularize the social media challenge, which has raised more than $200 million worldwide for ALS research.

The legacy of Pete Frates is living on, with the Ice Bucket Challenge being credited with supporting a new potential breakthrough in the quest for a cure for ALS.

An experimental medication may slow the progression of amyotrophic lateral sclerosis, or ALS, researchers reported Wednesday.

An activist who is unable to speak because of amyotrophic lateral sclerosis made his voice heard with a powerful speech about America’s “fundamentally broken” health care system at Tuesday night’s Democratic National Convention. Ady Barkan, 36, used a computerized voice to advocate for universal health care to fix a current system he called “dehumanizing.” “We live in the richest country in...

Researchers at UMass Medical School and Mass General Hospital on Wednesday announced potentially groundbreaking new gene therapy to treat the neurodegenerative disease ALS. The research received funding from the Ice Bucket Challenge, the viral fundraising effort that’s raised more than $100 million in under six years for the fight against ALS, also known as Lou Gherig’s disease. The UMass...

UMass Medical School and Massachusetts General Hospital are the first to safely use gene therapy to treat two research patients with ALS.

Sean Healey, the longtime chief executive of Affiliated Managers Group Inc. and a local business and philanthropy leader, died Tuesday at the age of 59 after living for more than two years with amyotrophic lateral sclerosis, according to the firm. Healey, the husband of former Mass. Lt. Gov. Kerry Healey, joined AMG (NYSE: AMG) as an executive vice president in…

Hundreds of people plunged into the chilly ocean at a Massachusetts beach on Saturday to honor Peter Frates, the former college baseball player whose battle with Lou Gehrig’s disease helped spread the ALS ice bucket challenge. About 1,000 people showed up for the final “Plunge for Pete” at Good Harbor Beach in Gloucester, and more than half of those braved the...

Every year, Jake Kennedy and his wife help thousands of families in need celebrate the holidays. But this year, the family behind Christmas in the City has a wish of their own — to cure ALS.

Jake Kennedy has organized Christmas in the City for the past 30 years. But this year, there’s another wish on the list: to find a cure for ALS.